Soulcysters – I know, we’ve mentioned them previously. They’re that good! Soulcysters has a message board, there are videos, blogs from other women, you can browse books on PCOS, read the latest medical and nutrition research, and maybe even share your story.
Join twitter! It’s free to create an account and you don’t have to give your real name, if you’re not comfortable. There are popular hashtags that you can search for to find other women also looking for support. #PCOS, #Soulcysters, and #PCOSfighter are just a few.
Living with a mostly invisible illness can be hard to explain to people who are mostly healthy. If you haven’t heard about The Spoon Theory yet – go to http://www.butyoudontlooksick.com/wpress/articles/written-by-christine/the-spoon-theory/. There are whole communities that have sprung up online of “Spoonies”. I hope it helps you put words to what can sometimes be complex emotional navigations in the world.
You can also keep an online journal. You can keep your posts private until you’re ready to share. It gives you a wonderful opportunity to see how far you’ve come in your journey.
You may also ask your doctor if they know of any support groups in your area. If they don’t know of any, you can create a profile on meetup.com. Find out if there’s a support group in your area. If there isn’t – you may be the right person to start one, and find others who also need that face-to-face time to talk about their challenges.